Comments on: My brain, and some news about same

By: Kia Ren

Kia Ren — Fri, 20 Nov 2009 04:25:06 +0000

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By: Paper’s revenge

Paper’s revenge — Thu, 26 Mar 2009 04:45:33 +0000

[...] card and bank receipts and trying to recreate a year that’s hazier than most – I received the glioma diagnosis in [...]

By: Mia

Mia — Fri, 06 Feb 2009 00:09:03 +0000

I read your blog and saw your MRI. My son was diagnosed with a grade 3 oligodendrion glioma with anaplastic astrocytoma in July of 2007. He had the tumor removed and has refused chemo and radiation. He has taken an alternate route and has been getting clean MRI’s every three months since. Thank GOD. anyway, I thought you might be interested in his protocol.
1. Removal of Brain tumor

2. Post surgically waited 6 weeks for the Decadron taper to be complete. He was still taking 1000mg Keppra daily.

3. You ordered the complete Blood panel for Brian which was a complete picture of all of his chemistry.

It showed a slight imbalance in his ANA reading but other than that everything appeared to be normal.

4. We purchased a wheatgrass juicer from Bestchoiceproducts.com which can be found on EBay ($54.95) and ordered a pound of wheatgrass to be delivered via FEDEX every other week ($26) http://www.gourmetgreens.com . We have slowly increased it to 2 oz in AM and 2 lbs of wheatgrass per week (19.00 weekly) (Fresh wheatgrass is the most potent). Dr. Ann Wigmore taught me about the wheatgrass therapy. It is a protocol which I used when I had cancer in 1988 and it seemed to really work. If anyone is interested here are some good books which she wrote on the subject. She passed away in a fire about 15 years ago. The books are; “The wheatgrass therapy” and “Be your own doctor” which does not put down the medical community it talks about our connection to nature. She wrote many books on the subject but those are the 2 we used.

5. He began juicing and drinking ½ oz of wheatgrass every morning. Subsequently, he has discovered that it works best when he takes it at night rather than in the morning with the Keppra.

6. He went to a vegetarian diet including the avoidance of caffeine, refined sugars, and wheat products

7. He began taking intravenous Vitamin C treatments weekly (he is currently taking 200grams per week) along with a regimen of supplemental vitamins

(I can provide a list of their names and quantities if you want)

8, In February 7 months post surgery he began an 8 week taper of the Keppra drug. He is currently taking 250mg every other day. I have attached the taper schedule to this email

9. He began taking vitamin B-17 100mcg in AM and PM he is slowly increasing to 1000mcg. He was of 7/8/08) taking 500mcg daily. .He is currently 1.5 years after surgery taking 100 mg of Keppra daily {1/09 }which he seems to still need.

10 MRI’s every 3 months to track progress (Thank you from the Bottom of My Heart)

11 He began hydro colon therapy in the 9th month post surgery. I felt that it was important to wait for him to get physically stronger before we went after what I believe to be the source of his tumor, impurities caused by a blockage in his colon. He was having symptoms of rectal bleeding and a sensation of “razor blades in his ureter” during urination. After the first colonic his symptoms disappeared and haven’t returned. He has done 6 colonics to date and will be doing at 3 more beginning next week. He is taking acidophilus to replace the favorable flora and fauna in the intestines after each colonic

12 In July 08 he had been having an issue with swelling in his larynx, that has abatted and he is now having ringing in his left ear and headaches. We are working on that now.

13. PRAYER

By: N

Fri, 14 Mar 2008 05:06:35 +0000

Hi Chirs,
While surfing I came to your blog. I think by now u may be fully fit. I don’t know if this will help but I just had a brain tumor removed on 12th Sept. 2007. I know how it is and wish no one goes through this kind of experience and not after getting married as I was the only person earning. As when my boss knew this he gave me 1 month pay and appointed a person in place of me. Just hoping God will help me some day.

By: TG

TG — Tue, 04 Mar 2008 19:01:53 +0000

Chris – Good luck with this, I just stumbled on this blog. My husband was diagnosed with a glioma 4 years ago, a few weeks before our wedding. We only had it removed in fall 2006 when it started growing, because it was an incidental find and he was asymptomatic. Unfortunately, he had a terrible, unforeseeable reaction to the surgery which I will not go into, but he is fully back at work now, enjoy spending time with his 2-yr old son, you would never know the trauma he experienced, and his tumor has shown no sign of recurrence. UCSF is a fantastic place to undergo treatment, we consulted with doctors there though were treated in Brigham and Womens in Boston where we live. You are in great hands, and hopefully, this will all become a distant memory soon…

By: Theresa

Theresa — Sat, 17 Nov 2007 06:26:33 +0000

Hey Chris,

I don’t know if this will help but I just had a brain tumor removed on Sept. 27. I am now planning my wedding, working, running, and doing all the things I love to do. I know its scary as hell to go through but God will never give you anything you cannot handle. I will keep you in my prayers.

Theresa Monroe

By: Cloud

Cloud — Wed, 18 Apr 2007 04:58:36 +0000

Hey Chris I just googled your name because I was thinking about you and Linda. I ended up here. So know that I am thinking about you.

By: David Howard

David Howard — Thu, 02 Nov 2006 22:05:35 +0000

Chris,
Alice forwarded your blog and information about your journey into the world of medicine. We do appreciate more than ever that she is working hard to make sure that her students are qualified to be at large in the population with a MD deisgnation. I have read with interest about some of your tests and the really great people you have encountered along the way. I wish you continued progress and send my prayers for you and Linda.
David Howard

By: Adrian Midgley

Adrian Midgley — Sun, 29 Oct 2006 10:23:02 +0000

Good luck.

By: Charles on… anything that comes along » Bilateral life vs singular life

Sat, 28 Oct 2006 21:49:38 +0000

[...] In other medical news, Chris Gulker, who used to write a column for the Tech pages at the Independent – and it was always good because of his Silicon Valley perspective) – has discovered what’s been wrong with his left arm: he has a glioma in his right (brain) hemisphere. See the image on the linked page: that white thing ain’t meant to be there. [...]