Breakfast in the jardin

Posted on June 12, 2007
Filed Under All, My Brain, Dawn Community, Dotcom Garden |

Another pleasant morning, another petit dejeuner in the garden. I’ve got nice clothes on this AM (for a meeting) so I didn’t have a chance to get LInda’s arugula seeds in, but maybe we’ll get a break on fatigue this PM, and can get to that.

Still wobbly, but we got with our oncology nurses at UCSF yesterday, compared notes (from my Moleskine) and are now on a steroid ramp-down that I hope will be more successful than last time around. This time I think I’ve got a good idea about the steroid lag-time: nurses had thought about 2 days, but my charts make it look more like a week in the case of my body. So we’ll ramp down slowly, hopefully back to the place I was 2 weeks ago in France, where edema is under control without too big a weakness hit from the steroids. I am eager to be exercising again…

Comments

3 Responses to “Breakfast in the jardin”

Howard Stidwill, Ph.D. on June 13th, 2007 1:32 pm

Hello Chris,

I have read your blog quite thoroughly and wondered if you have tried moderate resistance training for the legs, specifically for the quads. You are wise to walk as much as you can. If you have generalized fatigue, resistance training for major muscle groups may be helpful. (You will limit atrophy and it will take less energy to do things.) All this, of course, in consultation with your oncologist.

BTW. Our dog is named Cassie, we have an English garden with a white gate in the front of our house and I use a Mac.
cg on June 16th, 2007 2:22 pm

thank you for the advice… at the moment the heavy dsteroid dose makes it very hard to walk at all, but as I’m ramping down I’m getting some mobility back.

My goal ia a steroid/edema balance taht let’s me go 2.5 - 4 miles a day. I’d also like to do some training as you mention at Adobe’s gym.

Thanks for your thoughts….!
Howard Stidwill on June 18th, 2007 1:25 pm

I understand. When you are off the steroids you may want to focus on some lower body resistance training to regain strength back to those muscle groups. Continue to walk. When you get to that point I would be happy to write a basic exercise prescription for you. (Of course, you would want to run it by your oncologist to eliminate any contradications to what I suggest.) Let me know and the best.