Blogging your body
Posted on June 26, 2007
Filed Under All, Photos, Technology, My Brain |
Well, us nerdy guys, you, know, the RTFM set, figure that, if you give me the manual, I can figure anything out. One little problem I have at the moment is that my body didn’t come with a manual (although the 13 drugs I’m on are heavily documented), so I’m kind of figuring out things as I go along.
I started keeping a diary of meds levels, charting how I felt on a scale of 1 to 10, weight, blood pressure et al. 2 months ago. My oncology team flipped out when I showed them the docs: hardly anybody takes that much responsibility for their own care, it would seem.
So, I’m trying to figure out the thorny connection between weakness caused by the steroids, and problems caused by the edema, or brain swelling caused by last December/January’s radiation therapy. I’m hoping I’ll get stronger as I very slowly ramp down steroids (I think I went too fast last time I tried a less well-documented steroid change, and wound up in edema-land), though that has been a bit of an inconclusive process so far. I would love to get back to how I was feeling in France 3 weeks ago… maybe I need to back to France to feel good again? 
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[…] So, one of my projects hs been to move my health logs from paper to a spreadsheet, in this case Apple’s ‘Numbers‘ app in iWork ‘08. At the moment I’m just collecting the data from various notes and sources, but I’m hoping eventually to build some math into the spreadsheet that will result in nice, clear graphics output, so I can track exercise, drug intake etc. against how well I feel. We’re a little wobbly this AM after a pretty good week… cancer just has this variability about it… […]